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The Diving Bell and the Butterfly: A Memoir of Life in Death

The Diving Bell and the Butterfly: A Memoir of Life in Death
Author: Jean-Dominique Bauby
ISBN 13: 9780375701214
ISBN 10: 375701214
Edition: N/A
Publisher: Vintage
Publication Date: 1998-06-23
Format: Paperback
Pages: 131
List Price: $14.00

In December 1995, Jean-Dominique Bauby, the 43-year-old editor of French Elle, suffered a massive stroke that left him permanently paralyzed, a victim of “locked in syndrome.” Once known for his gregariousness and wit, Bauby now finds himself imprisoned in an inert body, able to communicate only by blinking his left eye. The miracle is that in doing so he was able to compose this stunningly eloquent memoir.

In a voice that is by turns wistful and mischievous, angry and sardonic, Bauby gives us a celebration of the liberating power of consciousness: what it is like to spend a day with his children, to imagine lying in bed beside his wife, to conjure up the flavor of delectable meals even as he is fed through at tube. Most of all, this triumphant book lets us witness an indomitable spirit and share in the pure joy of its own survival.

Library Journal

On December 8 1995, 'Elle' magazine editor-in-chief Bauby suffered a stroke and lapsed into a coma. He awoke 20 days later, mentally aware of his surroundings but physically paralyzed with the exception of some movement in his head and left eye. Bauby had "Locked-in-Syndrome", a rare condition caused by stroke damage to the brain stem. Eye movements and blinking a code representing letters of the alphabet became his sole means of communication. It is also how he dictated this warm, sad, and extraordinary memoir. Bauby's thoughts on the illness, the hospital, family, friends, career, and life before and after the stroke appear with considerable humor and humanity. Actor Rene Auberjonois's narration adds to the poignancy of the story. Sadly, Bauby died of his condition in 1997. This is a fine companion to works like Lucy Grealy's "Autobiography of a Face" (LJ 7/94). For all audio collections. Stephen L. Hupp, Univ. of Pittsburgh at Johnstown Lib.